Follow Our Journey
Repost @whineandcheezits Too accurate not to post. Although I am wearing different clothes than yesterday AND I'm showered! Go me! Just ignore the slight hole in the knee of my yoga pants 😂😂🤷🏼♀️
Any suggestions? What in the heck is off now? My thoughts are Carter nay have had one of his many and quite frequent growth spurt, requiring higher basal rates and higher carb ratios... And now he's done? He did sleep till 8am yesterday morning and had a 3h nap that same day. He's also been eating me out of house and home, hence the frequent blood sugar spikes! . . Side note... NO issues with loss of signal now that we are back on G5! Calling our medical supplier today to see if they'll change our monthly shipment back to G5 supplies... I've been told I might be in for a battle 🙄😑
I AM DONE with #dexcomg6 - DONE! last night it gave me a heart attack when I woke up randomly and it said the last reading was 128⬇️ but was last updated an HOUR ago. I flew out of bed and checked Carter... He was 104, thank God. I've had to tweak basal settings and carb ratios these past few days and I don't need G6 constantly telling me it has a "sensor error: wait up to 3 hours for readings". He's 17 months old... Obviously as we can all see here on #nightwatch , situations can change INSTANTLY in someone so little. This morning he kept getting spotty readings and then thankfully came back on just in time to tell me he was trending down and then doubling down. When I ran upstairs and poked him during his nap, he was 50. 50! I can't handle this. I am shaking and I am enraged that this "amazing" new software sucks so badly. It's constantly off or having a compression issue. Back to the G5 for awhile. Good ridden G6. . . . End rant 😑🤷🏼♀️
I found this idea on Pinterest and so I made several myself! A "low box" for Carter! They are just $1 pencil boxes filled with snacks for low blood sugar. I marked them all so they can just be grabbed at quick glance and the nutrition label doesn't need to be dissected. I made 4 and plan to put one in my purse, one in my car, one at home and one at my mom's (the only person I've ever let watch Carter). Nothing needs to be refrigerated and since it's now fall here in NH, I don't have to worry about the chocolate melting! . . They've got: . Mott's apple juice box 25g . Gogo squeez applesauce 16g . Hershey's chocolate bar, 1/4 a king size bar 11g . Tube glucose gel 24g . 10 M&Ms 10g . 7 peanut butter M&Ms 10g . 2 rolls Smarties 12g . Emergency Glucagon ... If you have other good "low" ideas for toddlers, do share! 😀
This photo pains me. And I know this is part of the grieving process, reliving this nightmare and forgiving myself for not seeing the signs that something was still very wrong with Carter this time last year. We battled lip and tongue ties and reflux... But none of those treatments really seemed to make him better. It was this time last year we started 5 month old Carter on solids to see if that might help his horrible reflux. And I think this was the nail in the coffin towards his Neonatal Monogenic Diabetes diagnosis. The solids would have far more carbs than the breast milk did and thus likely contributed to his blood sugar of 787 at diagnosis. So seeing this photo... Just weeks before this nightmare began... I don't really even know. It just puts a deep pit in my stomach that hopefully will go away with time. I'm probably going to flood my feed with pix of 5 month old Carter, prediagnosis when all I had to deal with was an extremely fussy, clingy infant. And the nightmare that is diabetes didn't yet exist in my world.
Tiny little men who love apples are just adorable, in my totally unbiased opinion 😍💙💙🤷🏼♀️ . . . #infantsandinsulin #cartertimothy #17monthsold #mommyslittleboy #neonataldiabetes #neonatalmonogenicdiabetes #monogenicdiabetes #chronicillness #momswhoblog #momblogger #t1dtoddler #diabetictoddler #t1dkids