One would think by the time our third child was born, nothing could surprise us or make us scratch our heads. Then Carter came into our lives. From the beginning, he just seemed so fragile. He always needed extra soothing and cuddling and teaching him to be independent at all was a struggle. He needed to be carried nearly all times in our carrier (what a lifesaver while I was doing home daycare!) and he just never seemed happy. Facebook posts over the past year were always about how sleep deprived and crabby I/Carter was.
The sleep-deprived me part is still very much true, but now that Carter’s diabetes is evident and working on being managed, he’s definitely a happier baby. As a newborn though, he was diagnosed with reflux and put on Ranitidine. He was also diagnosed with colic. I tried changing my diet several times because Carter was exclusively breastfeeding. I feel like I tried everything where it came to Carter. Eventually around 4.5 months old, I decided to take up our nurse at our pediatrician’s office with regard to her suggestion that maybe he was lip/tongue tied. I was positive he wasn’t tied, the hospital had told us so at his birth. His pediatrician also confirmed “no tie”. However, after several days of literally no more than a few hours of sleep at best, I decided to look into the place the nurse had suggested for a second opinion. At that point, I was desperate. After a 45 minute drive to Framingham, MA and about a half hour of waiting later… I was absolutely shocked beyond belief to hear that Carter was BOTH lip and tongue tied. The top was tightly tied while the bottom was a little more moderate. Both ties were recommended to be lasered, which we did right there in the appointment. Carter nursed better than he’d ever had in his life after the procedure, which gave me a lot of hope for the future.
In a way, I attribute Carter’s lip/tongue tie procedure as the “gateway” to the presentation of his diabetes. All of the sudden, Carter nursed so much better. He was taking in a ton more milk and within a month of the appointment had started solids, which he started to love as well. I think the new higher intake of milk combined with the introduction of solids led the way for Carter’s body to get “out of whack” with the lack of insulin needed to match the carb intake. But it’s interesting now to look back at Carter’s early days and the slew of medical issues we had go on at any given time. Carter was quite unlike my other two children and we knew it right away. Only on November 1, 2017 did we realize just how different!
Other parents of children with diabetes – did you know something was “off” about your child or their behavior pre-diagnosis? What signs or symptoms did you overlook? I would love to hear your thoughts or story in the comments!